Hand to Hold's Official Blog: Written by Parents for Parents

Trust Your Preemie Parent Instincts

26 week preemie

26 week preemie

My twin daughters were born at 26 weeks and spent 4 months in the hospital. One day while I was visiting my girls in the NICU someone told me to trust my instincts. I thought to myself, “Trust my instincts? What does that mean? Do I have powers now like a special 6th mommy sense?!” And the truth is I did and you do, too! It is actually amazing!

While the girls were in the NICU I noticed on 4 different occasions that one of my girls looked pale and just looked off. I brought it to the attention of the nurses right away and they took me seriously.

 It turns out that each time I noticed this, they actually ended up needing blood transfusions because their blood counts were low. I listened to my instincts, and I spoke up.

Another time I noticed that one of my girls was more fussy than usual. She just seemed uncomfortable and I couldn’t soothe her. I brought it to the attention of her nurse and she called the doctor in to look at my daughter. Her doctor discovered she actually had a hernia, so a few days later she had surgery to repair it.A NICU can be an intimidating place.  There are so many people with many different specialties. You may feel overwhelmed or feel like there isn’t anything you can contribute or add to your child’s care.  Don’t be afraid to ask questions or speak up. It may be out of your comfort zone at first, but building relationships with the nurses that you see every day will make it easier. If you notice something off about your baby, tell a nurse right away. A good nurse will always listen to  you.  If one nurse won’t listen, ask someone else.  Trust your instincts. You may notice something that isn’t right before they will since you see your baby more than they do and you are only focused on your baby. If your gut is telling you something is not right tell a nurse. If could turn out to be nothing and that’s even better.  Every time you ask a question about your baby, you learn something.

26 week preemie

26 week preemie

Having a child in the NICU is a challenging time. Make it to doctor rounds as often as possible.  This is when you will find out what the daily/weekly goals are and the most up to date lab and test results for your baby. You are allowed as the parent to be present during the doctor rounds on your child. This is a great time to bring up any questions or concerns you have. If something doesn’t feel right in your gut. SPEAK UP.

Use your instincts and advocate for your child. I know I am glad I did.

Finding An Anchor In The Wreckage of Prematurity (+ A Giveaway!)

A beautiful read for #preemie moms (+ get this bonus free printable!) Anchored: Finding Hope in the Unexpected by @KaylaAimee

The heart of my story centers on my journey to motherhood, the one in which I found myself joyfully pregnant after years of infertility only to then give birth unexpectedly at just 25 weeks. We named her Scarlette and she weighed one pound, eight … [Continue reading]

Navigating an Unexpected NICU Stay: The Boyd Family’s Story

Teddy's First Days at Home

Earlier this spring, Maggie and Nick Boyd were declared the winners of Hand to Hold's NICU Grand Prize Giveaway, which offered them an opportunity to share their story and raise crucial funding to help further Hand to Hold's mission. Their winning … [Continue reading]

Summer Activities for Your Preemie


The sun is out. The weather is warmer. It's finally summer! If you are anything like me, you worked really hard to keep your preemie home and safe from RSV and the flu all winter long. It's time to reward yourself and your little one with some fun … [Continue reading]

Preemie Babies and Pets


My first “kids” were our dogs. Chloe and Stella, one brown mutt, one black mutt. They weren’t (aren’t) the best behaved furballs and they shed uncontrollably, have a nasty habit of barking every time they hear anything (and I do mean anything) … [Continue reading]