Hand to Hold's Official Blog: Written by Parents for Parents

Living with Auditory Neuropathy Spectrum Disorder

Waiting for a CI mapping

Waiting for a CI mapping

When my husband, Scott, and I made the decision to have children, we knew there was a strong possibility our children would have hearing loss once reaching adulthood. A hereditary hearing loss is prevalent in Scott’s paternal family. Scott, his twin sister, father, and grandmother are all hearing impaired.

When our twin boys, Joseph and Campbell, were born at 24 weeks gestation, we quickly learned that preemies can have hearing loss. Campbell passed away after 23 days of life and never had a hearing screening. Joseph failed both of his newborn hearing screenings. We were told not to be too concerned as many preemies often fail their hearing screenings at first but pass once they are older. We took this to be true and crossed this off the list of things to be worried about. [Continue reading]

For the Love of Babies is Love that Goes Beyond

for the love of babies invite

With the ever changing healthcare landscape, it is often easy to get caught up in the challenges that plague the industry rather than focusing on the tremendous benefits and blessings made possible by the access we have to advanced medical care … [Continue reading]

When Your Child Is A Survivor

Peyton at 17 months old

When a stranger asks me if my daughter is our only child, a thousand thoughts run through my head. While it’s a common question for most people, it’s a loaded question for me. In truth, Peyton is a triplet. Her identical sister died a few hours after … [Continue reading]

10 Things Martin Luther King, Jr. Would Tell a NICU Parent

Source: Biography.com

Today, in honor of Martin Luther King, Jr. day, I thought it would be appropriate to revisit the words of this wise man. Think about it... what would he tell us NICU parents if he were still alive today? Probably the same things he said all those … [Continue reading]

Coping with Grief as a Special Needs Parent


Coping with, and overcoming grief, as a special needs parent, is an ongoing process. We ride a continuous rollercoaster of triumphs and tribulations where mere minutes can mean the difference between happiness and heartache. At times, you can become … [Continue reading]