Hand to Hold's Official Blog: Written by Parents for Parents

Hope During a Medical Crisis

I was keeping hope that it would be good news; our family didn’t need another medical crisis. But when the doctor called that day, my heart sank. It isn’t a good sign to get results from a brain MRI almost immediately.

People told me to “stay positive” and “be thankful.” But you know what?  “Staying positive” didn’t seem possible for me. We had just gotten devastating news and I was afraid.  I wanted to scream “how in the world can I be thankful for a brain tumor!?

Jaxson, my sweet and hilarious little spit-fire, had gone through so much already in his short life. He was born 4 months early at 23 weeks gestation and spent 93 days in the NICU. He suffers from Chronic Lung Disease, has had six surgeries, and is enrolled in physical, occupational, and speech therapies.

And now he was facing possible brain surgery and chemotherapy.

I was defeated and I had a difficult time keeping hope.

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Five Tips for Preemie Nutrition

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Does your preemie have eczema, allergies constipation or reflux? Maybe these are just things that you want to avoid? It's never to late or too early to begin getting your preemie on the best track nutritionally. When my preemie was born I thought I … [Continue reading]

Congratulations to Our 2014 Preemie Power Contest Winners

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We are pleased to announce the winners for Hand to Hold’s Fifth Annual Preemie Power Photo and Essay Contest during Prematurity Awareness Month.  Families who entered their children represented 32 states in the U.S. and we received entries from as … [Continue reading]

Biggest Prematurity Lesson? Shake It Off

Carolyn's son plays a game during speech therapy.

The moment you have a premature child you are faced with uncertainty and sometimes that uncertainty is caused by mixed messages and information which can make you feel like you were just hit by a Mack truck. Those sharing their ideas or thoughts on … [Continue reading]

Going Back: Volunteering in the NICU

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When we rode the elevator down from the 7th floor NICU for the last time, we knew that one day, we would be back. This place where we'd logged a significant part of our life, 5 months to be exact, had become familiar. It had saved our baby's life. So … [Continue reading]