Hand to Hold's official blog
Katrina A. Moline (TX) is a special needs mom to her micropreemie, Bryce. He was born at 24 weeks at home, where she and her husband gave him CPR until medical responders arrived. He spent 150 days in the NICU at Dell Children's in Austin, TX. Bryce has hydrocephalus with a VP shunt, is legally blind with glasses, has mild cerebral palsy and severe, global developmental delays. In July of 2012 she gave birth to her second child only one day shy of 37 weeks and with no complications. She posts regularly on her personal blog about life with a micropreemie, her struggles, accomplishments and family.
There are so many misconceptions when it comes to Cerebral Palsy. Most often it seems people assume that when you say your child has CP that means that they aren’t intelligent or that they are completely wheelchair bound. While this is the case for many living with CP, there are also many who struggle in [...]
I recently had to come to terms with the fact that my 24-week preemie will no longer be able to continue with the same therapy regimen he’s followed for the last three years, since coming home from a five-month NICU stint. We’ve relied heavily on therapy, from Early Childhood Intervention before Bryce turned three, as [...]
The 150 days that my son Bryce spent in the NICU at Dell Children’s Medical Center were the longest, most trying days of my life thus far. And it’s not hard to imagine that few trials going forth will test my resolve nearly as much as watching my 1-1/2 pound infant son fight for his [...]
Just when I think I’ve heard it all, when I convince myself nothing and no one can deflate me – some unwitting stranger does. And always at the moment I least expect it. Maybe I’m having a particularly ambitious day and I’ve ventured to the grocery store with my 3-year-old who doesn’t walk or talk [...]
Over the last couple of years people have asked me time and again if we’d have another. As an only child myself, I’d always promised my unborn child that they would have a sibling. But after everything we’d been though with Bryce, and continue to struggle with, I couldn’t bring myself to commit to that as-of-yet unkept promise. But as serendipity would have it, the decision was made for us and here I sit almost 36 weeks pregnant with Bryce’s little brother. [Read more]
Bryce’s First Day of Daycare – March 24, 2011 Often times having a child with special needs means one parent stays home at least part-time to care for that child. This is the case in our family, where I have stayed home, worked from home and worked away from home between part- and full-time since [...]
Most parents rarely have the need to have their child assessed, but for the special needs mom assessments become a regular part of the rotating specialist/doctor regimen. We endure assessments in therapy (often times over and over for each of the different kinds of therapy), at the pediatrician’s office and usually with a follow-up clinic [...]
Hand to Hold is a nonprofit 501(c)3 parent support organization and information and resources provided here do not intend to take the place of the relationship between a patient and personal physician.