Hand to Hold's Official Blog: Written by Parents for Parents

A Word from 2016 Baby Shower Luncheon Chair Fayruz Benyousef

Never in a million years does a family expect that they will have a premature baby or experience the tragic loss of an infant. Within less than five years we experienced both. [Read more]

A NICU Nurse Reunion

This is Jeannie. I met Jeannie in the NICU when she was assigned to my identical twin girls one Saturday afternoon. Still early enough in our NICU stay, we had bounced around from nurse to nurse, a new face each day, a new name to try not to forget, and a new personality to try […]

4 Tips for Raising a Child with Hydrocephalus

Whether your baby is diagnosed in utero or after birth, the diagnosis of hydrocephalus comes as a shock to any parent. A sad fact is that Intraventricular Hemorrhage (IVH) is the leading cause of hydrocephalus in preterm infants and varying levels of IVH are very common in preemies, especially extremely preterm babies. Unfortunately, just as there is […]

Delight Despite Delays

Sometimes you don’t need to fight for your child. Sometimes they can just play, just be. Sometimes, for parents preemies or special needs kids, it’s hard to know when it is one of those “sometimes.” When my son was born at 23 weeks gestation, I knew he probably wouldn’t be typical, but I kept fighting […]

Celebrating NICU Life with Listen to Your Mother

Each spring, select cities throughout the U.S. and Canada host the annual storytelling show, Listen to Your Mother. Listen to Your Mother is a national series of locally-produced shows in which local writers, authors, storytellers, bloggers, and more take the stage to share their written works on the beauty and the beast that is motherhood. […]