Sometimes you don’t need to fight for your child. Sometimes they can just play, just be. Sometimes, for parents preemies or special needs kids, it’s hard to know when it is one of those “sometimes.” When my son was born at 23 weeks gestation, I knew he probably wouldn’t be typical, but I kept fighting […]
Each spring, select cities throughout the U.S. and Canada host the annual storytelling show, Listen to Your Mother. Listen to Your Mother is a national series of locally-produced shows in which local writers, authors, storytellers, bloggers, and more take the stage to share their written works on the beauty and the beast that is motherhood. […]
I was standing in line at Vons, my cart full of packaged “healthy” food for my week in the NICU, when the lady in front of me turned to the side. I felt my face get hot and tears began to fall as I saw her round, swollen belly. She smiled at me and I looked down. All I could think was, that was supposed to be me. I’m supposed to be shopping for healthy food items for the last two months of my pregnancy.
Instead I was three hours from home, in a city I had never visited, living in a hospital room, hoping that my little girl would make it through the night.
Our NICU floor was on the same level as the labor and delivery unit. Late night coffee runs for me meant that I inevitably ran into a laboring mom walking the halls. I would watch her in envy, wishing desperately I could have had my chance. My early delivery came with no answers, no solutions, and felt very unresolved. As the weeks passed, and those weeks rolled into months, I saw countless moms and learned to just look down, so I wouldn’t face the pain that they were going to get to take their baby home, while I was just waiting to hear the words “discharge.” [Read more]
by Lana Macrum-Craig, Board President
My daughter Allie Reese would be celebrating her 9th birthday this month. Each year, as Mother’s Day approaches and soon thereafter, the date of her birth, my heart and mind become a little unsettled. Conflicting emotions of sorrow and pain intertwine with love and gratitude for the gift of being her mom.
Like most expecting mothers I had dreamed of joyous milestones with Allie and all that motherhood encompasses. But Allie’s early arrival at 26 weeks gestation and subsequent diagnosis of a very rare and terminal genetic disorder quickly dissolved my joy into anguish, as I knew I would only know the physical presence of my daughter for a short time.
Allie lived 18 precious days. During that time, my family struggled to navigate our emotions and the complicated and overwhelming reality of the Neonatal Intensive Care Unit (NICU). [Read more]
The night I met my son will forever live in my mind as one of the scariest, loneliest, yet happiest nights of my life.
My wife gave birth to our first child more than 100 days before he was supposed to be born. I wasn’t even mentally prepared to be a dad, even though we planned the pregnancy and had a due date. I just figured I had more time to get ready, but I was wrong. At six o’clock in the evening, I was eating dinner and getting ready to play softball when my wife came home in tears. By 7:33 that night, our son was born. So much happened in those 90 minutes, it is still hard to believe. I experienced fear, anger, anxiety, frustration, sorrow and the thought that I might lose my son and my wife on a hot summer night in which I was supposed to be playing a game instead of contemplating starting my life over. [Read more]