Hand to Hold's Official Blog: Written by Parents for Parents

Tips for a Successful Neurology Appointment

Our oldest daughter has been seeing a neurologist since birth. After 15 years, we have found there are some things we can do proactively to make neurology appointments go more smoothly. Why would your child see a neurologist? A neurologist is a doctor who deals with diseases and conditions that affect the nervous system. If your […]

The NICU Window

My son is nearly 15 months old. Some days I look at my busy, clumsy toddler and forget that the NICU ever happened. Other days I remember it like it was yesterday, the memories of our month in the NICU still so vividly alive in my mind. Where we currently live, I drive by the […]

Feeding Difficulties & Your Preemie

by Anne Boon, MS, CCC-SLP After being intubated with a breathing tube for so many months Bryce’s ‘suck muscles’ were weak and trying to feed from the bottle took so much energy that he would tire out before filling his belly. We supplemented tube feedings by way of an NG tube for weeks while trying […]

When Coming Home from the NICU Isn’t What You Expected

In the NICU Faye seemed like she did so well. She sailed through her two-month stay with no issues and the doctors we all so impressed with her. They called her the superstar of the ward. This was my second time around at being a mama, so once there was talk of her coming home […]

Invisible Disabilities: Advocating for the Unseen

Parents of preemies often remark on how one can never quite seem to leave the NICU behind. Sometimes they are referring to the emotional effects of a traumatic birth and NICU stay. Sometimes they are referring to the aftermath of prematurity itself: developmental delays, physical delays, and other “invisible disabilities.” When a baby is born prematurely, […]