Hand to Hold's Official Blog: Written by Parents for Parents

Tips for a Successful Neurology Appointment

Our oldest daughter has been seeing a neurologist since birth. After 15 years, we have found there are some things we can do proactively to make neurology appointments go more smoothly. Why would your child see a neurologist? A neurologist is a doctor who deals with diseases and conditions that affect the nervous system. If your […]

Meet the Professional: What Does an Occupational Therapist Do?

Raising a kid with special health and developmental needs can seem daunting. Often we come home from the NICU with a list of follow-up appointments to make, screenings to do and specialists to see. In honor of Occupational Therapy Month, we spoke with Rebecca Pokluda, MOTR/L, Clinic Director and Owner of KidWorks Therapy Services, to answer […]

Feeding Difficulties & Your Preemie

by Anne Boon, MS, CCC-SLP After being intubated with a breathing tube for so many months Bryce’s ‘suck muscles’ were weak and trying to feed from the bottle took so much energy that he would tire out before filling his belly. We supplemented tube feedings by way of an NG tube for weeks while trying […]

Invisible Disabilities: Advocating for the Unseen

Parents of preemies often remark on how one can never quite seem to leave the NICU behind. Sometimes they are referring to the emotional effects of a traumatic birth and NICU stay. Sometimes they are referring to the aftermath of prematurity itself: developmental delays, physical delays, and other “invisible disabilities.” When a baby is born prematurely, […]

Meet the Professional: What Does a Dietician Do?

While a baby was in the NICU they are often cared for by a NICU dietitian who monitored their nutrition, caloric intake, and growth. After discharge parents must continue to monitor their baby’s nutritional needs. A good discharge plan can help, but it is crucial that parents follow-up with your pediatrician as well. Often parents and doctors seek the assistance of a […]