Hand to Hold's Official Blog: Written by Parents for Parents

The Journey to Ear Tubes

Prematurity is the gift that keeps on giving. Even if you were lucky enough to escape the NICU with no lingering complications, sometimes issues will crop up much later that leave you wondering if prematurity is rearing its ugly head again. For us, it has been hearing issues. Is it related to prematurity, genetics, or […]

Tips to Stay Well During RSV Season

by Sel Unite, MD, Pediatrician at Treehouse Pediatrics Usually I enjoy a little bit of cold weather here in Austin. It’s a welcome break from some of the almost unbearable days of scorching heat in August and September, and it reminds me that Thanksgiving and Christmas are just around the corner. Unfortunately, at least from […]

Keeping My Respiratory-Compromised Child Healthy During RSV Season – One Mom’s Story

I was excited and scared when we finally got to bring our youngest daughter, Mighty Z, home from the hospital. It had been six long months since she had been born with Congenital Central Hypoventilation Syndrome (CCHS), and during that time she had been trached and vented. Before the hospital would allow us to bring Mighty Z home, they prepared us to care for her and taught us how to troubleshoot problems that might arise. Her doctors and nurses made sure we understood how important it was to keep Mighty Z, a baby who had been intubated and was still trached and vented, away from every contagious “bug” that tried to bite her. RSV, the flu or even the common cold, could result in not just sickness for Mighty Z, but in her death. [Read more]

In the NICU, Blood Equals Life

Blood isn’t a topic that everyone thinks about until they need it. January is Blood Donor Awareness month and our NICU babies need blood much more than you realize. [Read more]

What is RSV & When is RSV Season?

by Tiffany Grisham

Having a new baby is a time for celebration and joy, but for some new parents, worries and fears seem to only be second to diapers and feeding, especially if that new baby was born premature or with special health concerns. For the parents of premature babies, the time spent in the NICU can be stressful and scary, but coming home can be worse. Exposing their fragile newborns to the dangers of the world can be nightmare inducing. Parents can’t protect their babies from everything but having knowledge about common risks can be a powerful tool in caring for your baby. [Read more]