Hand to Hold's Official Blog: Written by Parents for Parents

Book Review: Girl in Glass by Deanna Fei

We received a complimentary copy of Girl in Glass in exchange for this review.

girl in glass deanna feiDeanna Fei, author of Girl in Glass (Bloomsbury Books, 2015), didn’t seek national attention. Fei’s four month NICU stay with her daughter Mila led to a national uproar when AOL CEO Tim Armstrong identified her daughter as a “distressed baby.” The “distressed baby” claim was used to defend Tim Armstrong’s decision to decrease retirement spending for AOL employees, including Fei’s husband Peter. Fei’s first child was born full term and without complication. Thirteen months later she had an entirely different birthing experience with her daughter Mila at 25-weeks gestation.

A journalist and author by trade, Deanna Fei spends the first three-quarters of her book delicately weaving the story of her full-term, healthy son, Leo, to the uncertainty of her daughter Mila’s birth at 25-weeks gestation. She captivates the reader in a heartfelt, yet at times doubt-filled, four-month journey through the NICU. Fei writes, “the only way to brave this limbo is simply to bear witness. To bear witness is to know her as she is, no more and no less. To know her is to love her, because she is mine, because I am her mother. The more I love her, the harder it gets.” (Fei, 2015)

By the time Fei’s “distressed baby” captures national attention in her book, readers have engaged in Mila’s four-month NICU stay and the roller-coaster ride, Mila’s NICU graduation and thirteen months at home recovering from her micro-prematurity.

As Fei discovers her new normal with a 2-year-old son and a 1-year-old daughter, she’s unexpectedly brought to the center of media attention due to Tim Armstrong’s public gaffe as to the value of her child’s life. In a town hall meeting with AOL employees, Armstrong defends the 401k rollbacks as a cost-saving initiative due to healthcare expenses of two “distressed babies.” Armstrong’s gaffe led to a media spectacle that captured the world’s attention on all social media outlets. News channels reported the story, bringing to light the underlying fears of employees losing benefits or employers determining the health benefits of an employee based on their health history.

Fei spends the final chapters of her book highlighting the history of neonatology. Informative and interesting, she effectively speaks to NICU graduate parents who, like me, are curious to the political and developmental milestones leading to modern neonatology.

Fei’s book far exceeds her goal in drawing the reader in to a micro-prematurity journey mirroring the experience with public media outcry. The book successfully engages a reader in to the heartfelt uncertainty of her micro-prematurity journey, giving voice to what NICU parents often feel but cannot express.

Despite the opportunity to do so, Fei never once expresses animosity or anger at Tim Armstrong’s “distressed baby” comment. In fact, she seeks to understand as well as be understood, publicly sharing her experience and teaching society what a micro-premature journey is like with humility and honor. Her book is infused with character and forgiveness and it is this taking the higher road that weaves the emotions of her NICU journey with the emotions of a media firestorm lifting it with grace and beauty.

To find out more about Deanna Fei and her book, Girl in Glass, visit her website.

 

Katie-Reginato-CascamoKatie Reginato Casamo lives in San Luis Obispo, California and shares an active life with her husband John and 4-year-old son Giovanni, born at 30 weeks, 3 days at 2lbs, 8oz.  Katie unexpectedly developed pre-eclampsia and was airlifted from her home in Southern Oregon to a Children’s Miracle Network hospital in Medford, Oregon, where she spent 56-days with her son in the NICU.  Giovanni quickly became a feeder/grower in the NICU without a complication though has spent countless hours in Early Intervention therapies.

Katie had an opportunity to take time off her career in insurance and financial services to raise Giovanni, and through their prematurity, journey she decided to return to school for a career that is better aligned to her values.  Katie is currently pursuing her Master of Arts in Organizational Leadership through Gonzaga University and has a passion for working with organizations that serve families impacted by prematurity or special needs. She also serves as one of Hand to Hold’s Regional Ambassador Coordinators.

 

 

Katie Reginato Cascamo About Katie Reginato Cascamo

Katie Reginato Cascamo lives in San Luis Obispo, California and shares an active life with her husband John and 6-year-old son Giovanni born at 30 weeks, 3 days at 2lbs, 8oz. Katie unexpectedly developed pre-eclampsia and was airlifted from her home in Southern Oregon to a Children’s Miracle Network hospital in Medford, Oregon where she spent 56-days with her son in the NICU. Giovanni quickly became a feeder/grower in the NICU without a complication though has spent countless hours in Early Intervention therapies.

Katie Reginato Casamo recently graduated with her Master of Arts Organizational Leadership with a concentration in Servant-Leadership, She is the founder of Courageous Steps, providing leadership to organizations who care for families experiencing prematurity or special needs.

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  1. […] was infuriating, but her story, above all, is inspiring. You can read contributor Katie’s review of Girl in Glass, as she writes about it much more eloquently than I […]

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