Hand to Hold's Official Blog: Written by Parents for Parents

See you later…

Today is a bittersweet day for us…
this is the last day that we will be managing Life after NICU.
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Although the NICU experience will always be a part of our journey, it is now time for us to move on from running this amazing group and dedicate that time back to our families.  We have two remarkable, little boys between us, plus patient and supportive husbands, who all need us now, more than ever.

We have so enjoyed creating and fostering this wonderful community! As much as we hope we’ve helped some of you to cope and heal from your NICU experiences, you’ve truly helped our hearts to heal as well. We have gained so much from all of you!

We are leaving you in excellent hands,
and we couldn’t be more excited for the future of Life after NICU…




Beginning September 1st, Hand to Hold will be managing our unique parent support forum and website.  

Hand to Hold is a national 501(c)(3) non-profit organization dedicated to providing comprehensive navigation resources and support programs for parents of preemies, babies born with special health care needs and those who have experienced a loss due to these or other complications.  You might remember that we featured them in February as part of our Give Back series.

Since Life after NICU was founded in October 2011, the amazing staff of the Hand to Hold team have been instrumental in our success, both as mentors and some of our biggest cheerleaders. We’re not sure that Life after NICU would be what it is today without their support.  As we realized it was time to transition ourselves away from the group, Hand to Hold was our absolute first choice for new management, and we were thrilled when they said yes!
Hand to Hold has years of experience in supporting NICU families just like you, a wealth of information and resources available on their site, and a wonderfully inspiring parent blog – Preemie Babies 101.  We think you’ll agree that we’re leaving Life after NICU in good hands!

The work of Hand to Hold left a lasting impression on us from our early days, when we viewed their video, “Understanding PTSD After a NICU Stay”.  The following quote comes from that powerful video and really spoke to why fostering this group was so important to us and why we believe that finding a community of support is so key to emotional and mental healing after a NICU stay:

“All NICU parents should not be ashamed by admitting that they’re having difficulty coping. I urge all NICU parents to seek out support – whether from NICU staff, parent support groups, social workers or professional therapists. The good news is that with appropriate emotional support, most NICU parents emerge from this terrible experience psychologically stronger. Research clearly shows that the most common human adjustments to trauma are resilience and posttraumatic growth. High-risk parents know how to do the heavy lifting… endurance is their middle name… and they know they have moved mountains.”

– Dr. Michael T. Hynan, PhD

 

 

We hope that participating in Life after NICU so far has given you some of the support you were seeking… all we’ve ever wanted is to make a difference for at least one person.

Don’t worry, we’ll still be around… in fact, you may even hear from us from time to time on the page, and we plan to participate more casually in the community as well.  We will always be members of the NICU parent club.

Thank you for supporting one another, for encouraging each other, for offering up your experiences and advice to one another. Thank you for helping us to grow this group to numbers we never imagined (over 10,000 followers on Facebook – unreal!), and for spreading the word to others. Thank you for helping other NICU parents, like you, realize that they are not alone.

Please join us in supporting Hand to Hold
as they continue our mission… 
Life after NICU is in such great hands!

We have LOVED serving you here at Life after NICU. This group has given us a sense of purpose, and we have all of you to thank for that.

Love and many thanks,
Aimee & Gena

Aimee Sprik About Aimee Sprik

Aimee Sprik (IL) is mother to Connor, born unexpectedly early at 26 weeks, in December 2008, due to an infection. Connor, with his parents, survived a complicated 120-day NICU stay, which changed their lives forever. Since bringing her son finally home, she's felt passionately about volunteering her time and resources to supporting fellow NICU parents, both at the hospital where Connor was born, and by co-founding Life after NICU, an online parent support forum now moderated by Hand to Hold. You can follow Aimee on her personal blog, Sprik Space, or send her an email.

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  1. […] we are just a little bit sad that Aimee and Gena are taking a step away right now and won’t be with us every day, we are so honored that they would trust us with their “baby.” […]

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