Hand to Hold's Official Blog: Written by Parents for Parents

Emerging from Isolation at the End of Cold, Flu & RSV Season

The days are getting longer and cherry blossoms and tulips are blooming. For most people these are signs of spring. If you’re a parent of a preemie, these aren’t just symbols of something new. These changes in nature signal the end of cold, flu and RSV season. We brought my son, Theo, home from his […]

Navigating the NICU as a Family: Connecting Siblings with NICU Babies

Sibling love is a tough journey for any family and even harder when you have a baby in the NICU. Learning to manage your own emotions, as well as the guilt and stress that comes with having a medically fragile child, can come at a large cost. When you add siblings into the mix, the […]

Feeding Difficulties & Your Preemie

by Anne Boon, MS, CCC-SLP After being intubated with a breathing tube for so many months Bryce’s ‘suck muscles’ were weak and trying to feed from the bottle took so much energy that he would tire out before filling his belly. We supplemented tube feedings by way of an NG tube for weeks while trying […]

The Four Areas of Self-Care

Practicing self-care is important for all of us and even more crucial for parents of preemies and children with special needs.  Below are several examples of how you can nurture yourself and make self-renewal a part of your everyday life in the four areas of self-care: physical, emotional, spiritual and mental.1 Physical Care Be kind […]

Invisible Disabilities: Advocating for the Unseen

Parents of preemies often remark on how one can never quite seem to leave the NICU behind. Sometimes they are referring to the emotional effects of a traumatic birth and NICU stay. Sometimes they are referring to the aftermath of prematurity itself: developmental delays, physical delays, and other “invisible disabilities.” When a baby is born prematurely, […]