Hand to Hold's Official Blog: Written by Parents for Parents

A Letter to My Doctor

Dear Trusted Doctor, I knew at 16 weeks. At 18 weeks I spoke up. At 20 weeks I pleaded. At 22 weeks it was too late to stop. Despite aggressive measures at 23 weeks, five days, I cradled two perfectly formed babies in my arms. For two hours I held them, kissed them, whispered over […]

Remember Your Baby During the Holidays

The year my husband and I got married was also the year we were expecting our first baby. Our son’s due date was set for October and we envisioned having our first Christmas together as a family of three. That changed when Carrick Michael Goyer was born many weeks too early in June. Our son […]

Turning Loss into Advocacy

by Lana Macrum-Craig, Board President

My daughter Allie Reese would be celebrating her 9th birthday this month. Each year, as Mother’s Day approaches and soon thereafter, the date of her birth, my heart and mind become a little unsettled. Conflicting emotions of sorrow and pain intertwine with love and gratitude for the gift of being her mom.

Like most expecting mothers I had dreamed of joyous milestones with Allie and all that motherhood encompasses. But Allie’s early arrival at 26 weeks gestation and subsequent diagnosis of a very rare and terminal genetic disorder quickly dissolved my joy into anguish, as I knew I would only know the physical presence of my daughter for a short time.

Allie lived 18 precious days. During that time, my family struggled to navigate our emotions and the complicated and overwhelming reality of the Neonatal Intensive Care Unit (NICU). [Read more]

Life in the NICU: A Stressful Situation

A normal pregnancy, followed by an easy delivery, that’s what every mother hopes for. Those first moments after giving birth should be filled with happy tears, while you cradle your new bundle of joy. But for preemie moms – and even term-NICU moms – that usually isn’t the case. For me, my happy day turned […]

Honest Grief: From Being Strong To Being Real

In the six and a half years since my 14 month old daughter died, I have read numerous books about losing a baby, grief, grief recovery, spirituality and grief, the stages of grief (they don’t exist) and so on. I’ve read stories of mothers who lost babies, young children and adult children. Husbands who lost […]