Never in a million years does a family expect that they will have a premature baby or experience the tragic loss of an infant. Within less than five years we experienced both. [Read more]
by Lana Macrum-Craig, Board President
My daughter Allie Reese would be celebrating her 9th birthday this month. Each year, as Mother’s Day approaches and soon thereafter, the date of her birth, my heart and mind become a little unsettled. Conflicting emotions of sorrow and pain intertwine with love and gratitude for the gift of being her mom.
Like most expecting mothers I had dreamed of joyous milestones with Allie and all that motherhood encompasses. But Allie’s early arrival at 26 weeks gestation and subsequent diagnosis of a very rare and terminal genetic disorder quickly dissolved my joy into anguish, as I knew I would only know the physical presence of my daughter for a short time.
Allie lived 18 precious days. During that time, my family struggled to navigate our emotions and the complicated and overwhelming reality of the Neonatal Intensive Care Unit (NICU). [Read more]
“I’m so sorry.” The beginning of what was about to be a life changing moment for me. Hearing those words from the ultrasound technician caused instant tears. My heart stopped. The next words tore me apart from the inside: “You’re baby’s heart is not beating anymore.” How could this be? What did I do wrong? […]
When Sam died, I remember feeling so utterly alone – like I was the only person in the world that this could possibly have happened to. My connection with other baby loss parents from all over the world, made me realise, that this wasn’t true – that there were families in every corner of the globe trying to wade through the same murky waters of grief. [Read more]
My son woke up tonight from a nightmare. He told me his best friend was dead. As a parent of a twinless twin, the symbolism was very difficult for me. A best friend. Dead. Could the image in his nightmare have been his brother? How do you go about telling a little boy that there […]