Hand to Hold's Official Blog: Written by Parents for Parents

Making G-Tube Feeding Friendlier + Tubesie Giveaway

Before my son was born I knew nothing about feeding tubes. I naively thought they were for elderly and severely brain injured patients. Never in a million years could I have imagined sending my six–week-old son to surgery for a G-tube. I hated it at first. I felt like a failure for not being able […]

Advice from a Former TEF Preemie, Now a Preemie Dad

My husband was a preemie and a special needs child. I guess I’d always known that, though I’d never applied “special needs” to anything to do with him. After the birth of our third child, however, I saw that part of my spouse’s past in a new way. My husband was born as a late […]

The Sky is the Limit: Breastfeeding a Vent-Dependent NICU baby

While on three-day hospital bed rest with PPROM, I researched what was required to create a breast milk supply under these circumstances: our son was going to be an extremely low birth weight, premature, and sick baby. He would be separated from me at birth, untouchable for days, possibly weeks. I read that pumping within […]

The Challenges of Good Nutrition

It was Thanksgiving lunch at Joseph’s school. Parents and grandparents had joined their children in the school cafeteria for a special Thanksgiving celebration. Because of Joseph’s multiple food allergies and compromised gastrointestinal system due to short bowel syndrome, I had packed a lunch for Joseph that was both allergy friendly and one that I knew […]

Your Preemie Has Feeding Issues? You Are Not Alone!

One of my happiest moments during my daughter’s five-month NICU stay was one morning when I called her primary nurse, and she told me Daphne had drunk an entire bottle of expressed breast milk. A whole 40ml of milk, by mouth (that’s just slightly over one ounce, for those not versed on the metric system.) […]