Browsing all posts in "High Risk Baby".
Should I Save My 23-Weeker?
Alexia Pearce delivered her little boy at 23-weeks and says now, “If I’d known then what I do now, I’d have wanted him to die in my arms.” Take a moment to read her incredible story of now 3-year old Nathan and his inevitable premature death. Alexia wishes to raise awareness of the important decisions [...]
NICU Graduate Clinic Follow Ups
When we left the hospital with Roxy, we were informed we would have an appointment card mailed to us with a date and time for her NICU Graduate Clinic checkup. Roxy’s first checkup was in March of this year and I was a little scared of what to expect, but I really just knew that [...]
Home for the Holidays
When my son, Haylen, was born at 27wks 5days (2 lbs 13oz, 15.5 inches), we were much like other parents of preemies and we were caught completely unaware and off guard. From my own experience, I realized that though most people know that some babies are born prematurely, they really don’t understand the extent of [...]
Being Quarantined During the Holidays
Roxy came home on November 11, 2009. Two weeks before Thanksgiving. Our hospital had placed strict rules on visitors to the NICU and Neonatal Nursery during Roxy’s last two months because the flu epidemic had gotten so bad in our area. Only parents and biological grandparents were allowed to visit during October and the beginning [...]
Preemie Halloween Costumes
In 2008, our 26 week preemie was released from the NICU a week before Halloween. We had been so consumed by her issues (weight gain and bottle-feeding) in the hospital, we hadn’t given the holiday any thought. Since Addie was quarantined during RSV season, we had no place to take her for Halloween, but I [...]
Sharing Your Child’s Progress
The moment our daughter was born 14 weeks early, we were thrust into a flurry of decisions to be made. Who would travel with her to the children’s hospital, who would stay with me in the maternity ward, who would contact our bosses and HR departments, and so on. Immediately, the news started to be [...]
Music Therapy for your Preemie
Our NICU experience came with a lot of “Boy, I wish I had known that earlier…” moments. Music therapy falls into that category! We were told about our hospital’s music therapy program a few months after our daughter was born. The therapy team was a group of musicians who traveled around the hospital, playing music [...]
Preemies & RSV
I was just wondering how many of our preemie babies have actually gotten RSV, either in the NICU (can they get it in the NICU?) or during their first few years of life at home. Some questions I’m curious about are: 1. If your preemie got RSV did you have him under strict quarantine or [...]
