Our son, the mighty Shaw Richter, was born at 27 weeks, just over two pounds and spent 122 days in the NICU. Shaw’s medical history is long in his short 2 years of life. He suffered a stroke at birth and endured 22 spinal taps that left a permanent bruise on his backside. He had […]
In honor of March as Cerebral Palsy Awareness Month, Dr. Mary Elizabeth Parker, a pediatric physical therapist & professor of pediatric physical therapy, was our guest at the March 21, 2013, Facebook Chat discussing Cerebral Palsy, a common diagnosis for newborns who have spent time in the NICU. [Read more]
My husband Andre and I met a little later in life, and after realizing our dream of being married in a castle in Scotland we immediately began trying to expand our family beyond our two furry children, retired racing greyhounds named Holly and Nova.
Fast forward a few years and several rounds of IVF later we were ecstatic to find out that it had finally worked and we were pregnant! We found out we were having a little boy, and we would just have to be patient until he arrived.
Week 16 we are having an ultrasound with Maternal Fetal Medicine (MFM) and the doc tells us that his cerebellum is smaller than normal, but it might not be an issue. She is concerned that his head is large and his limbs are short (pssst Doc, have you looked at me?) She decides that she is pretty certain this baby will have Down syndrome. Also, the ventricles in his brain are larger than normal and he is diagnosed with something called Ventriculomegaly, we’ll have to keep an eye on it so it doesn’t turn into Hydrocephalus. [Read more]
Most parents rarely have the need to have their child assessed, but for the special needs mom assessments become a regular part of the rotating specialist/doctor regimen. We endure assessments in therapy (often times over and over for each of the different kinds of therapy), at the pediatrician’s office and usually with a follow-up clinic […]