Hand to Hold's Official Blog: Written by Parents for Parents

4 Tips for Raising a Child with Hydrocephalus

Whether your baby is diagnosed in utero or after birth, the diagnosis of hydrocephalus comes as a shock to any parent. A sad fact is that Intraventricular Hemorrhage (IVH) is the leading cause of hydrocephalus in preterm infants and varying levels of IVH are very common in preemies, especially extremely preterm babies. Unfortunately, just as there is […]

The Mother I Didn’t Want To Be

I spent a year waiting to see if I could live with the man I married (he didn’t live in the same country until a month after the fact) before we considered having children. Three, to be precise. One to complain that they were the oldest child, one to complain that they were the youngest, and […]

{Friday Feature} Bee Mighty

Our son, the mighty Shaw Richter, was born at 27 weeks, just over two pounds and spent 122 days in the NICU. Shaw’s medical history is long in his short 2 years of life. He suffered a stroke at birth and endured 22 spinal taps that left a permanent bruise on his backside. He had […]

{FB Chat} Empowering the Cerebral Palsy Parent

In honor of March as Cerebral Palsy Awareness Month, Dr. Mary Elizabeth Parker, a pediatric physical therapist & professor of pediatric physical therapy, was our guest at the March 21, 2013, Facebook Chat discussing Cerebral Palsy, a common diagnosis for newborns who have spent time in the NICU. [Read more]

{Friday Feature} The Howard Family

My husband Andre and I met a little later in life, and after realizing our dream of being married in a castle in Scotland we immediately began trying to expand our family beyond our two furry children, retired racing greyhounds named Holly and Nova.

Fast forward a few years and several rounds of IVF later we were ecstatic to find out that it had finally worked and we were pregnant! We found out we were having a little boy, and we would just have to be patient until he arrived.

Week 16 we are having an ultrasound with Maternal Fetal Medicine (MFM) and the doc tells us that his cerebellum is smaller than normal, but it might not be an issue. She is concerned that his head is large and his limbs are short (pssst Doc, have you looked at me?) She decides that she is pretty certain this baby will have Down syndrome. Also, the ventricles in his brain are larger than normal and he is diagnosed with something called Ventriculomegaly, we’ll have to keep an eye on it so it doesn’t turn into Hydrocephalus. [Read more]