Hand to Hold's Official Blog: Written by Parents for Parents

This Road We Call Preemie Life

During the 29 weeks I was pregnant with my preemie, I tried to go for as many walks as I could. Those walks helped me feel so much better mentally, as well as physically. As I walked I would lovingly rub my growing belly, the weather growing colder as fall turned into winter, daydreaming about […]

Emerging from Isolation at the End of Cold, Flu & RSV Season

The days are getting longer and cherry blossoms and tulips are blooming. For most people these are signs of spring. If you’re a parent of a preemie, these aren’t just symbols of something new. These changes in nature signal the end of cold, flu and RSV season. We brought my son, Theo, home from his […]

Tips for a Successful Neurology Appointment

Our oldest daughter has been seeing a neurologist since birth. After 15 years, we have found there are some things we can do proactively to make neurology appointments go more smoothly. Why would your child see a neurologist? A neurologist is a doctor who deals with diseases and conditions that affect the nervous system. If your […]

Feeding Difficulties & Your Preemie

by Anne Boon, MS, CCC-SLP After being intubated with a breathing tube for so many months Bryce’s ‘suck muscles’ were weak and trying to feed from the bottle took so much energy that he would tire out before filling his belly. We supplemented tube feedings by way of an NG tube for weeks while trying […]

When Coming Home from the NICU Isn’t What You Expected

In the NICU Faye seemed like she did so well. She sailed through her two-month stay with no issues and the doctors we all so impressed with her. They called her the superstar of the ward. This was my second time around at being a mama, so once there was talk of her coming home […]