Hand to Hold's Official Blog: Written by Parents for Parents

Dear Preemie (On the Day You Are Born)

Well, my dear, here you are. I don’t know why fate brought us together so soon, for neither of us are finished growing. You are still so small and fragile; I am still preparing myself to be your mom. I planned to read a few more books and learn how to crochet before you were […]

New Hope for 22-Week Preemies

A new set of guidelines has come out for the resuscitation of preemies, and it means a huge deal to families such as ours. It provides more hope that preemies born in the 22nd week can get treatment.

Shortly before our son was born at 22 weeks and 6 days of gestation, the on-call neonatologist told us that they had a rule at the hospital that babies should not be resuscitated before 23 weeks and 0 days. “I don’t recommend that babies should be intubated at this stage because the results are so poor. If you give birth after midnight, I’ll be the one who comes and treats him, but my heart won’t fully be in it.” This caused us considerable stress, wondering “Is he going to show up?” He did, the birth occurred at 11:20 p.m., and he “rounded up” and saved our first and only son. [Read more]

Book Review: Girl in Glass by Deanna Fei

Deanna Fei, author of Girl in Glass (Bloomsbury Books, 2015), didn’t seek national attention. Fei’s four month NICU stay with her daughter Mila led to a national uproar when AOL CEO Tim Armstrong identified her daughter as a “distressed baby.” [Read more]

Do I Have Delayed-Onset PTSD?

It’s been over two years since my daughter’s traumatic and extremely premature birth, and I’m just now realizing that I might suffer from a form of PTSD. According to the Mayo Clinic, PTSD (post-traumatic stress disorder) symptoms may start within three months of a traumatic event, but sometimes symptoms may not appear until years after the event. […]

The Power of Breast Milk for a Micro-preemie

My micropreemie has officially gained 100 pounds!   When he was in the NICU, our very sweet NICU nurses and staff would make Jackson cute little hand-made signs out of construction paper and affix them to his incubator each time he gained a pound.  I vividly remember the day I walked in and saw from a […]