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For me, the hardest thing about being a parent to a special needs child is watching Caleb, our son who was born with VACTERL, go through what he has gone through: a NICU stay, four surgeries, numerous hospitalizations and ER visits, countless specialist appointments, lab draws, radiology tests, daily medications and treatments, therapy, etc. All [...]
A quick internet search will net you tons of information on how to go about selecting a pediatrician for your newest addition. Things listed to consider range from whether you share parenting beliefs with your pediatrician to whether the office staff is friendly. Some take into consideration whether there is sufficient parking at the office. [...]
Recently, Lead PB101 Blogger, Kathryn Whitaker, sat down with Dr. Ari Brown, author, speaker and pediatrician based in Austin, Texas, and asked her to share some insight on finding the right pediatrician for your preemie, questions to ask and credentials the doctor should carry. PB101: Dr. Brown, are there differences between a family practice doctor and a pediatrician [...]
When we left the hospital with Roxy, we were informed we would have an appointment card mailed to us with a date and time for her NICU Graduate Clinic checkup. Roxy’s first checkup was in March of this year and I was a little scared of what to expect, but I really just knew that [...]
When my son, Haylen, was born at 27wks 5days (2 lbs 13oz, 15.5 inches), we were much like other parents of preemies and we were caught completely unaware and off guard. From my own experience, I realized that though most people know that some babies are born prematurely, they really don’t understand the extent of [...]
This comment was submitted by Patricia Ray on the “Book Giveaway!” post. I thought it brought up many important concerns that we all face as parents of preemie babies, and I wanted to make sure everyone had a chance to read it and respond. Patricia graciously gave me permission to republish her comment. Hi there. [...]
Our daughter Adeline has been wearing glasses since she was thirteen months old, nearly a year ago. For the first few months, we were questioned by a lot of people, “How did you know that she needed glasses?” Depending on the situation, I’ll sometimes give the short answer. “Addie was born prematurely and she visits [...]
Question from Katie – We’re struggling with [my preemie's] doctors right now. We’re in _____, and the only doctors that work with the NICU are in one BIG office. So far we haven’t been able to see the same doctor, nor talk to the same nurses when we call with questions. They keep telling us [...]
When I got home from the NICU with my tiny preemie baby, I had an appointment set up to see my pediatrician just one or two days later. It was January, one of the worst months of RSV Season, and I was paranoid about keeping my baby away from other children. Also, I was nervous [...]
Hand to Hold is a nonprofit 501(c)3 parent support organization and information and resources provided here do not intend to take the place of the relationship between a patient and personal physician.