Hand to Hold's Official Blog: Written by Parents for Parents

Organization 101 for the Medically Complex Child

With a medically complex child, organization is key.

Truth be told, I have always been very organized. A useful skill after my son Caleb was born with VACTERL association as it helped us to better navigate his seemingly endless specialist visits, therapy, hospitalizations, surgeries, medications, and insurance. Read on for my best organization tips. [Read more]

Need Financial Assistance? A Guide to SSI, Medicaid, BCMH and WIC

medicaid

I remember having the girls and not even thinking about money. I remember how overwhelmed I felt when we started getting bills for thousands and thousands of dollars. I immediately started freaking out and had no clue what we were going to do in order to pay all these bills. My mom works for an [...]

Review of The Preemie Primer

Last night I finished reading The Preemie Primer, by Jennifer Gunter, MD.  Truthfully, it’s the first book about preemie babies that I’ve read cover to cover.  I was pleasantly surprised at how helpful and informative many sections of the book were, but I was also disappointed at how unpersonal it was.  Jennifer does share her [...]

The Dave Ramsey Call

TheDaveRamseyShow

I found it! I searched and searched for the original call that I referred to in my Preemies & Social Security article a couple weeks ago, because a number of you requested it, and thanks to the help of the Dave Ramsey radio team I was able to get an audio of the complete call. [...]

Preemies & Social Security

sscheck

A few weeks ago I was listening to Dave Ramsey’s talk radio show and a woman called in and said she had recently had a preemie baby.  She had started receiving social security benefits during her baby’s NICU stay and then continued to receive them for a few months after her baby came home because [...]

Your Baby Wears Glasses?

Addie's Glasses

Our daughter Adeline has been wearing glasses since she was thirteen months old, nearly a year ago.  For the first few months, we were questioned by a lot of people, “How did you know that she needed glasses?” Depending on the situation, I’ll sometimes give the short answer.  “Addie was born prematurely and she visits [...]

Journal Entry: 4 Months 1 Week Old

Dear Readers:  I pulled this entry from my journal to give you an idea of what many preemie parents face after bringing their baby home.  My baby at this time was 4 months and 1 week old actual age and had been home from the NICU for 4 1/2 weeks. “(Baby Girl) has been doing [...]