Hand to Hold's Official Blog: Written by Parents for Parents

Researchers and Parents Working Together Meet Research Milestone

The NICU community is a world in which information and ideas are shared and collaboration is key. Hand to Hold often has the opportunity to work with medical professionals and other organizations on a variety of research studies. One such research study has been funded by Patient Centered Outcomes Research Institute (PCORI) and will help define […]

Three Things to Do When Given a Special Needs Diagnosis at Birth

I never imagined I would have a special needs child. No one ever does, I suppose. My dreams were for a happy, healthy bouncing boy. A brother for my firstborn. Although there were slight indicators something was wrong when my baby was in utero – primarily that he had a two vessel cord – I […]

Why You Should Avoid the Internet When You Have a Preemie

When your baby comes prematurely, it’s tempting to hit the Internet in search of comfort and reassurance. While venturing online may turn up some useful facts about a certain diagnosis, or commiseration from other parents facing similar circumstances, it can also bring a lot of undue anxiety. Sometimes, it’s just best to avoid the internet […]

Lab Rat: Deciding to Give Your Child to Science

Recently, I flew from Massachusetts to Texas with my son. He was one of 30 children taking part in a clinical trial at the University of Texas. This is a pretty cutting edge study in the US for kids with cerebral palsy, and he was “lucky” enough to be chosen. Deciding to take part in the study was […]

{Friday Feature} Finding Connection and Healing Through Women’s Stories

Throughout my life I have always been fascinated by other people’s stories. I was a journalism major in college and was known to be more engaged in listening to the conversation at the table next to me at a restaurant than my dinner companions’.  I always joked that I was interested in other’s tales because my […]