Hand to Hold's Official Blog: Written by Parents for Parents

How a Bump on the Head Led to a Great Idea: The NICU Now Podcast is Here!

A recent article in The Times theorized that if English philosopher, political economist and civil servant John Stuart Mill were around today, “his father would have dosed him not with Thucydides and Plato, but with podcasts.”1 Why? Because while the rest of the internet entertains with cat videos and fake news, the podcast is “unashamedly, almost […]

4 Things You Can Do When Someone You Love is in the Hospital

The following is a guest post from a member of our Hand to Hold – NICU Family Voices community. If you have an essay, an experience, or tips you would like to share with our readers, please email leighann@handtohold.org. by Natalie Butterworth This is meant to be helpful for those who have a friend or […]

Did We Meet Our Podcast Campaign Goal?

We are thrilled to announce that thanks to the generosity of our donors and the fundraising efforts of our Hand to Hold community, we were able to raise $22,055 during our two-week Podcast Campaign, surpassing our goal by more than $2,000! Wow! We would like to thank the more than 200 donors who supported our […]

Turning Loss into Advocacy

by Lana Macrum-Craig, Board President

My daughter Allie Reese would be celebrating her 9th birthday this month. Each year, as Mother’s Day approaches and soon thereafter, the date of her birth, my heart and mind become a little unsettled. Conflicting emotions of sorrow and pain intertwine with love and gratitude for the gift of being her mom.

Like most expecting mothers I had dreamed of joyous milestones with Allie and all that motherhood encompasses. But Allie’s early arrival at 26 weeks gestation and subsequent diagnosis of a very rare and terminal genetic disorder quickly dissolved my joy into anguish, as I knew I would only know the physical presence of my daughter for a short time.

Allie lived 18 precious days. During that time, my family struggled to navigate our emotions and the complicated and overwhelming reality of the Neonatal Intensive Care Unit (NICU). [Read more]

You Are Not Alone: Fostering Prematurity Awareness Around the Globe

In meeting many NICU parents, I’ve gathered that not one of us would wish the NICU experience on anyone after having gone through it. It is terrifying and so destabilizing on multiple levels that one wouldn’t wish it on their worst enemy. Can you imagine, though, what it would be like if your baby had […]