Prematurity is the gift that keeps on giving. Even if you were lucky enough to escape the NICU with no lingering complications, sometimes issues will crop up much later that leave you wondering if prematurity is rearing its ugly head again. For us, it has been hearing issues. Is it related to prematurity, genetics, or […]
This is a follow-up from Alden’s first post, Sleep Like a Baby: Toddler Sleep Study.
After a few months of doctor’s appointments and tests, our 22-month-old daughter, Neala, had her tonsils and adenoids removed, as well as her turbinates reduced. She was diagnosed with severe sleep apnea, and after her sleep study, we went to the ear, nose and throat doctor for a follow up appointment. They informed us that she’d greatly benefit from surgery and as she sat contently reading her books in the doctor’s office, he said, “Oh, yeah…we can really help that!” The “that” he was referring to was her Darth Vader breathing which I’d become so used to that I hadn’t realized that our definition of quiet and everyone else’s definition of quiet was completely different. [Read more]
Katie Talkington shares the birth story of her twins born at 24 weeks and how peer support from Hand to Hold helped her through the loss of her daughter and the care of her surviving son. [Read more]
My son Jax was born at 23 weeks, 3 days gestation. He spent 93 days in the NICU. Luckily (and rather unusually), he did not require any surgeries while he was in the hospital. There were plenty of scares: heart ligation, laser eye surgery for aggressive and severe ROP, hernia repair, and more. But somehow, […]
Like most micro-preemies, my Daphne, faced many challenges in the NICU: 2 months on the respirator, BPD, infection scares, digestive issues, kidney failure… With all that, one thing we did not encounter was surgery. Yet, we knew from the very first days that she would need major surgery, eventually. She was born with two congenital […]