Hand to Hold's Official Blog: Written by Parents for Parents

Meet the Professional: What Does a Neonatal Therapist Do?

When a baby is born premature or with special health care needs, they require immediate, intensive care. With all the medical interventions and monitoring it’s easy to start seeing your baby as a patient, instead of the little person that they are. But we know that what we do in the NICU has long-term impact. As […]

Meet the Professional: What Does an Occupational Therapist Do?

Raising a kid with special health and developmental needs can seem daunting. Often we come home from the NICU with a list of follow-up appointments to make, screenings to do and specialists to see. In honor of Occupational Therapy Month, we spoke with Rebecca Pokluda, MOTR/L, Clinic Director and Owner of KidWorks Therapy Services, to answer […]

{Professional Insight} How to Explain Behavioral Therapy to Children and Teens

Sitting in the quiet waiting room just minutes before her therapist came to retrieve her, my 8-year-old turned to me, and with a clarity that always surprises me she asked, “Mom? Why do I come to therapy?”

It’s a hard question for us parents to answer. We want to protect our kids, make them feel safe, encourage their individuality, yet we don’t want to make them feel like they are different from their peers. My daughter is highly sensitive, and the last thing I wanted to do was add to her anxiety or uncertainty. [Read more]

Delight Despite Delays

Sometimes you don’t need to fight for your child. Sometimes they can just play, just be. Sometimes, for parents preemies or special needs kids, it’s hard to know when it is one of those “sometimes.” When my son was born at 23 weeks gestation, I knew he probably wouldn’t be typical, but I kept fighting […]

How to Cope with not Meeting Milestones

When your child hits milestones, it is one of the greatest feelings in the world. We all get excited, jump up and down, and share the news with pretty much everyone we know.

When you have a preemie in the NICU or just home from the NICU, what happens? Do they still hit those milestones? Do they accomplish them later? What can you do if they aren’t meeting milestones, how do you cope?

Milestones were huge for us in our house, and I will tell you that they did not come easy and were not accomplished in the normal time frame. So how do you deal with it? [Read more]