Hand to Hold's Official Blog: Written by Parents for Parents

Your Story is Valid

As a supportive network of NICU parents, we do our best not to compare experiences, but to recognize that everyone’s experience is different, and everyone’s feelings about that experience are completely valid. It seems no matter how long the NICU stay, many of us carry some degree of guilt about not being able to protect our babies.

Each experience is unique to that parent. [Read more]

A NICU Nurse Reunion

This is Jeannie. I met Jeannie in the NICU when she was assigned to my identical twin girls one Saturday afternoon. Still early enough in our NICU stay, we had bounced around from nurse to nurse, a new face each day, a new name to try not to forget, and a new personality to try […]

Graduating from Occupational Therapy

My 8-year-old twin girls graduated from occupational therapy last week.

Our journey in therapy has not been a long one. For years I counted us among the lucky ones: 31-weekers who, through babyhood and toddlerhood, showed no immediate signs of needing assistance. They met their milestones about two months behind, as expected. They didn’t have trouble eating or speaking.

Sure, they were a little clumsy, but they were kids.

Sure, I ended up helping with shoes, zippers and buttons way longer than I should have, but there were two of them. It was just faster that way. We were fine.

Last summer I started to realize that maybe we weren’t fine. [Read more]

Managing Multiples in the NICU? Don’t apologize.

When you are in the NICU with twins, triplets or higher order multiples, you are not only having to manage one baby’s health care needs, but two, three…It is going to be exhausting trying to keep things straight, who’s experiencing what, the times each baby will be having assessments, what medication they may need to be on, and then you need to get some sleep – have you tried sleeping when you have multiples (even a singleton) in the hospital? It’s hard! You may feel half-rested, as you try to sleep “with one eye open” or keeping your ears perked, half listening for the ring of your cell phone sitting by your head. You don’t want to miss anything, so it is hard to get your body to be at one hundred percent rest. [Read more]

Stories of Laughter in the NICU

Laughter is important. It will get you through the difficult times, even if it’s only a short respite from the worry and pain.

That’s why we asked our communities on the Preemie Babies 101 and Life After NICU Facebook pages to tell us what made them laugh in the NICU. What gave them a brief moment’s relief from the stress and uncertainty? [Read more]