Hand to Hold's Official Blog: Written by Parents for Parents

Video: Birth and Death of a Hemangioma

I just found this video on YouTube and it was fascinating to me. My 27-weeker had a hemangioma on the top of her head that was still very noticeable when she turned 1, but it quickly disappeared after that and I can’t really see it in pictures of her at 18 months. It never grew anywhere near the size of this poor girl’s.

Anyway, I thought this video was educational and I hope it will be helpful to some of you who have also dealt with hemangiomas, especially if yours have been this severe.

Afton Mower About Afton Mower

After Mower (UT) lost her firstborn son at 21 weeks.  Her daughter was born a year and a half later at 27 weeks.  The NICU was overwhelming and isolating and it was through those two experiences she was led to found this social hub for parents to find the support they needed. Afton also gave birth to another daughter, born two days overdue after four months of strict bedrest. She believes it is a tender experience to hold a special baby in your arms when his spirit returns to his heavenly home, a miracle to watch tiny babies survive the risks of prematurity and a blessing to hold a healthy full-term baby after months of difficulty and sacrifices.

Comments

  1. my son has one, and i didn’t realize they were a preemie thing…hm!

  2. I babysit a little girl with one of these on her forehead, the top of her head and on her leg.

  3. It’s not only a preemie thing. I had a friend who’s son was full-term and he had a hemangioma on his forehead. But I was told by my pediatrician that they were common with preemies.

  4. Yes the little girl I babysit was not a preemie either.

  5. Great video and excellent results… Very thankful for this video, my preemie never had this issue but it’s encouraging to see and to know for any future reference…

  6. ahh, i see. thankfully my son’s is small, in a private area and is fading (he’s almost 1 actual age)

  7. My 25 weeker who is almost 1, has 2 hemangioma on the center of his back. They have faded but the NICU told me they should go away by the time he turns 2.

  8. 1 of my twins have 1 on her elbow….she is only 10 months and it just keeps growing…so will see what happens

  9. My little premmie had/has one on her bottom lip. Definatley not noticable like it was when she was a baby but can still c it on certain angles – she nearly 3 now.

  10. oh gosh…my 25 weeker Jemima has one on her neck, We watched it grow in NICU, started off as a pin prick The drs said she would have had it anyway…but looking at this it may have been predisposed to her being preemie, very interesting. Its not getting bigger & they have said it will go by the time she’s 2..we will see

  11. my preemie girl has 2. she’s 10months now. one on her upper arm and another on her stomach.

  12. Cathy Camacho says:

    My daughter is a twin born at 37 weeks weighing 4 lbs 14 oz. When she was 1 month old Hemangioma started growing on her nose. It grew fast and we were able to find a dermatologist that put her on steroids to stop the growing. We have not been able thus far found anyone in our state that are willing to remove it. It is a deep and a raised so it had the black and blue look along with a huge bump. It kept her from breathing well when she was a baby and it swells when it is hot or she is sick. I would love any information of doctors that are or not in the state of Utah who is willing to remove it.
    Thanks

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