What are YOU looking for?
Since I created this blog hoping to help, inform, and encourage other parents of preemie babies, I’m wondering if I’m actually accomplishing that goal. Mostly, I’m addressing issues that were important to me when my baby was in the NICU for over three months. However, because every situation is different I don’t know if I’m providing helpful information for all of you.
I’m looking for a bit of feedback. What is it YOU are looking for in a site about preemie babies? Are any of your needs being met at Preemie Babies 101? What do you suggest to improve my site as a support system for new preemie parents?
I really appreciate your input. I want this site to benefit as many parents as possible because it is one way I can repay the kindness shown me when my emotional and physical well-being seemed to be hanging by a thread after the birth of my 27-weeker.
Thanks again! I look forward to your comments.
Affectionately Posted on
I really enjoy your site. I was able to look over it some while I was in the NICU but have a lot more since being home.
I personally would love to hear about life after the NICU along the lines of development. My twins were born at 26 wks and as I’ve watched them I struggle with knowing how to help them in their development and if they are doing okay. I have a degree in Early Childhood Education and thought it would be very helpful in this situation but I am struggling to know what to compare them to, a one month old or a four month old.
I would love to hear from moms who have been through similar experiences!
I totally understand your concerns about your preemie’s development. When it came to being on track or not, I usually used my preemie’s corrected age (as if she was born on her due date) to see how she was developing. Typically she was right on track with the charts, and sometimes a little ahead. Most often she was right between her actual age and adjusted age, so that made me feel good. People often told me that she would be the same as other kids around age 2 and that’s probably about right. She’s 3 now and no outsider would ever know she was a preemie. She has two cousins born 1 and 2 months after her due date and she is right between the two in most things (did that make sense?) Anyway, I would advise that you track your preemie’s development with their corrected age – it will give you more peace of mind and frankly measures where they should be developmentally. Whenever my preemie did something early for her corrected age I just praised her for how advanced she was! :)
Im new to the whole premmie baby thing, i have a premmie baby who is now 29 weeks gestation and 5 and half weeks old. We still have a long way to go.
What i like to look at is all the stories, they give me so much to look forward to. At the begining i told the nurse that i have been reading stories online and she turned around and said that you only hear about the success stories but that is what i want to read. I like to hear all the possitives, i think it is important to be possitive while you have such a young baby, why think the worst all the time. you just have to deal with things as they come. thank you for having this web site for people like us who need to just have some information that the nurses or doctors can not tell you. It only comes from people who have been there.